HD Awareness Month 2:1 Match

This HD Awareness Month, your gift can go even further. Thanks to a generous 2:1 match, every dollar donated will have double the impact for HD families across the country. Help turn awareness into action and hope into progress.

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THIS MAY

Help us turn up the global volume on HD Awareness by sharing your stories, photos & videos to social media using #LetsTalkAboutHD

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Looking for Support or Guidance with HD?

Connect with the Illinois State Social Worker Pam Stern, LSW

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📣 Share your voice! Take the HDSA Strategic Plan Survey and help shape the future of our mission.

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Illinois Statewide Virtual Support Group

Join Pam Stern, LSW at the Illinois Statewide Virtual Support Group every 4th Monday at 7:00pm! Sign up using heypeers.com/meetings.

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2026 Team Hope Walk - Loda

Registration is now open for the Loda Team Hope Walk. Sign up today and join us on September 12!

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FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

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Explore the Voice of the Patient Report to hear directly from people and families living with Huntington’s disease — their stories, struggles, and hopes that will help shape the future of care and advocacy.

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2026 Team Hope Walk - Naperville

Registration is now open for the Naperville Team Hope Walk. Sign up today and join us on May 17!

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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Did you miss the 2025 Illinois Education Day?

We got you covered! Click here to check out the recorded presentations.

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Looking for Research Opportunities?

Check out the Research Opportunity page to see what is actively recruiting and upcoming in the state of Illinois!

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