Rush University Medical Center
Huntington's Disease Center of Excellence
Phone Number: 312-563-2900
Fax Number: 312-563-2024
Email: Movement_HD@rush.edu
Rush University Medical Center
1725 W Harrison St.
Suite 755
Chicago, IL 60612
Website: https://www.rush.edu/services/conditions/huntingtons-disease
HD Clinic Directors:
Debroah Hall, MD, PhD
Samantha Patel, MD
Clinic Nurse: Devonda Chambliss, BSN, RN | Phone: 312-563-2900
Clinic Coordinator: Phone 312-563-2900 | Email: Movement_HD@rush.edu
Clinical Research Coordinators:
Tyler Svymbersky, BS | Phone: 312-563-0676 | Email: Tyler_Svymbersky@rush.edu
Nathan Krinickas, BS | Phone: 312-563-4771 | Email: Nathan_Krinickas@rush.edu
Genetic Counselor: Marc Rosenbaum, CGC, MS | Phone: 312-563-7434 | Email: Marc_Rosenbaum@rush.edu
Social Worker: Samantha Negrete, MSW, LSW | Phone: 312-563-7434 | Email: Samantha_Negrete@rush.edu
To reach us you may call, email, or send us a message via MyChart*.
Response Times: The following contact information is monitored from 8:00am – 4:00pm, Monday – Friday. We will do our best to respond within 24-48 hours. Please leave specific details as to how to best respond to your message.
New Patients
Please call 312-563-2900 to speak to a clinic coordinator to leave your name and information. Our licensed genetic counselor will reach out within 24-48 hours to complete an initial phone intake prior to scheduling.
Our genetic counselor will cover topics including the following:
v Testing Process
v Cost of testing
v Risks involved with testing
v Symptoms you are experiencing
v Family history
v Life insurance, disability insurance, and long term care insurance
v What type of care you received in the past
v What your first visit will look like
Returning Patients
Please call 312-563-2900 and follow the prompts to:
v Schedule an Appointment
v Request Medical Records
v Speak to a Clinic Nurse
v Request Prescription Refills
v Billing Questions
v URGENT and after hours you will be leaving a message for the on-call team (if an emergency please call 911)
*MyChart
Patients can access MyChart access MyChart by completing an ACCESS REQUEST FORM
Complete the form and submit via one of these options:
v Return it to your doctor’s office
v Email the form to the Rush Health Information Management Office: mychartrequest@rush.edu
v Fax to 312-942-5549
v Mail to:
Rush Health Information Management Office, MyChart Request
1611 W. Harrison St. L1
Suite 001
Chicago, IL 60612
Be sure to include your email address at the bottom of the form where indicated and check the box authorizing us to email you an activation code – You CANNOT get this code over the phone. Once you have this activation code you can go to MyChart and register.
Northwestern Medicine
Huntington's Disease Center of Excellence
Phone Number: 312-695-7950
Fax Number: 312-695-5747
Email: hd@nm.org
Northwestern Memorial Hospital
Lavin Pavilion
259 E. Erie St
Suite 1900
Chicago, IL 60611
Website: https://www.nm.org/conditions-and-care-areas/neurosciences/movement-disorders/huntingtons-disease
HD Clinic Director:
Clinic Coordinator and Nurse: Alaina Slempkes, RN | Phone: 312-695-7950
Clinical Research Coordinators: ZsaZsa Brown | Phone: 312-503-4121
Genetic Counselor: Lisa Kinsely, CGC, MS | Phone: 312-503-2131
Social Worker and HD Program Manager: Emily Zivin, MSW, MPA | Phone: 312-926-8048
New Patients
Please call 312-695-7950 or email hd@nm.org
If you already have an HD diagnosis you will be scheduled to see our HD neurologist (Dr. Danny Bega or Dr. Danielle Larson) and an HD Neuropsychiatrist (Dr. Razvan Popescu or Dr. Amy Corcoran). You will likely meet our clinical nurse, social worker, dietician, and genetic counselor as well. We also work closely with our HD rehab team at the Shirley Ryan AbilityLab.
If you do not have an established diagnosis, our genetic counselor will call you back within 24-48 business hours for discussion that will cover topics including the following:
v Testing process
v Cost of testing
v Risks involved with testing
v Concerns about symptoms, if any
v Discussion about whether or not you wish to obtain life insurance, disability insurance, and/or long term care insurance prior to testing and why this is recommended
v Your reason for wanting tested
v Your family history
v Whether or not you will want a neurological exam
Returning Patients
Please call the following numbers for:
v Schedule an Appointment | 312-695-7950
v Billing Questions | 312-695-9797
v Medical Records | 312-926-3376
Message/Email/Fax Response Times: We make every effort to return your phone call on the day we receive your message. Please understand, however, that our nurses may need to talk with your physician before returning your call. This may slightly delay our callback to you. Also, please leave an alternate phone number where you can be reached.
v Please allow up to 48 hours for phoned medication refills. Keep this in mind if you are running low on your medications.
v Please allow up to 10 business days for prescriptions that must be mailed to you. Test results must be reviewed by your physician. Please allow the nurse sufficient time to contact your physician prior to returning your call regarding test results.
v Please allow up to 10 business days for completion of letters and forms that your insurance company, other physicians, or your employer might request. Note: The Medical Records Department will handle disability applications.