Connect with our local chapter:
Illinois Chapter-HDSA
P.O. Box 1883
Arlington Heights, Illinois 60006-1883
For questions about our chapter:
If you are in need of a social worker, please contact Emily Zivin, HDSA Illinois Chapter Social Worker at 630-443-9876 or

Larry Haigh- President
Larry Haigh joined the board in January 2017, and has served as the Board Vice President. Larry currently works for Herscher Community School District #2 as the Agriculture Instructor and FFA Advisor. After attending the National HDSA Conference in 2016, and being a part of the NYA (National Youth Alliance) he wanted to help give back locally in Illinois. His Grandmother is currently fighting HD, and his mother tested negative for HD in the summer of 2016. Larry has many family members who are living at risk. It is his goal to help educate others about HD, and to fight for a cure. Larry currently resides in Ashkum (south of Kankakee), enjoys spending time with his family, and helping others. He plans to help spread HD awareness anyway that he can. Larry hosts the Central Illinois Support Group, and Chairs the Central Illinois Team Hope Walk.

Dave Hodgson- Vice President
Dave is past president of the Illinois Chapter and lives with his wife, Susie, in Somonauk, Illinois. Dave has served as an adult co-advisor of the National Youth Alliance. Dave serves on the HDSA National Committee of Team Hope Walk Coordinators.  Dave's late wife, Paula, died with Huntington's disease. They had four children at-risk for HD. Dave and his wife, Susie, co-host the HDSA Illinois Chapter's annual Team Hope Walk. Dave amd Susie co-host the Rockford Support Group.

Charlotte Rybarczyk-Treasurer
Charlotte Rybarczyk has previously served on the Illinois Board as President, Vice President, and Secretary. She is currently in the role of Chapter Treasurer. She has lost her mother, five aunts and uncles, her sister and a cousin to Huntington's disease. After receiving a negative test result for HD she remains committed to the cause having two nephews still at risk. She chairs two events; the Spring Fling and the Baggo tournament, and also sits on the nominating committee. Charlotte also serves on the National Field Committee as a mentor to other HDSA chapters in the Great Lakes Region. She and her husband Steve live in Rolling Meadows.

Jenny Placek-Secretary
Jennifer Placek joined the board in September 2013 and currently serves on the Team Hope Walk committee. She has an uncle by marriage with Huntington’s disease. Both her uncle and all of his siblings are affected, leaving five children at risk as well as three grandchildren. Jennifer graduated from Michigan State University in May 2013 and currently lives at home with her parents in Woodridge. She is preparing to apply to graduate school to receive her masters in genetic counseling and to one day become a genetic counselor.

Holly Fraleigh
Holly resides in Western Springs,Illinois, and holds a degree in Business Administration from Michigan State University. She has spent 15 years as a corporate trainer followed by several years in social services. For over 30 years she has been an active volunteer, board member, and fund raiser. She hopes to be part of an effort to recruit individuals not directly affected by HD in their families and become more involved with HDSA.

Marilyn Kahn
Marilyn has served on the Illinois Chapter of the Huntington’s Disease Society of America (HDSA) for over 20 years, most of which has been in fundraising. She has co-chaired the Annual HDSA Dinner Dance for the past 10 years, and served as co-chairman of the HDSA State Convention. Marilyn’s personal connection to Huntington’s Disease in her family has challenged her to find a cure or treatment for HD, and through this, she and her husband, Barry, founded and co-facilitate the Lake County HD Support Group at Advocate Condell Medical Center in Libertyville. Marilyn & Barry (and their dog, Parker) reside in Libertyville & enjoy spending time with their 6 sons & 9 grandchildren.

Barry Kahn
Barry has served on the Illinois Chapter of the Huntington’s Disease Society of America (HDSA) for over 20 years, having served as President, Vice President & Treasurer. He also served on the National HDSA Board of Trustees for 6 years, 4 of which he served as Treasurer. Barry, along with his wife, Marilyn, have facilitated the Lake County Huntington’s Disease Support Group, held monthly at Advocate Condell Medical Center in Libertyville, for over 20 years. Barry has co-chaired many of HDSA’s events, including the HDSA Illinois State Convention & the Annual Hearts for Huntington’s Dinner Dance. Through his personal connection to Huntington’s Disease, Barry has been dedicated to finding a cure or treatment for HD. Barry and Marilyn love spending time with their six sons and nine grandchildren!

Ann Terry
Ann Terry is the newest board member of the Illinois Chapter of the Huntington's Disease Society of America (HDSA), and she was elected in September of 2018.  Ann's father passed away two years ago from HD.  She and her brother have not been tested.  Ann resides in Aurora, Illinois, and is a certified companion caregiver. Ann earned a Masters Degree in Busines from Western New England College.  Ann is excited to be on the Illinois Board and looks forward to being involved in any way possible to support the HD Families of Illinois.

Andy Hucker
Andy is a financial analyst at AbbVie Biopharmaceuticals in North Chicago, Illinois. Andy, who tested negative for the HD gene at Chicago Rush Hospital HD program’s COE in 2013, is one of three siblings whose father tested positive for the HD gene post-mortem in 1998. He lives in Lindenhurst, IL, with his wife, Sandi, and three children, Marshall, Skylar and Logan. He has served on the HDSA Illinois Chapter's annual Team Hope Walk Board since 2013.

Wayne Galasek
Wayne Galasek is the founder and President of the American Insurance Schools, co-founder/President of the Oak Park Invitational Charity Golf Tournament, and President of the Chicago Tour Guides Professional Assn. He resides in Oak Park with Judy, his wife of 43 years who tested positive in 2005. Judy’s father, grandfather and several uncles all died with HD. Wayne and Judy’s daughters and 3 grandchildren along with a number of contemporary cousins are living at risk. Judy is currently participating in the Signal Study. The entire family is dedicated to raising awareness, generating research funding and providing support of local families afflicted with HD.

Maryann Moynihan Editor, Hopes & Dreams chapter newsletter
Maryann Moynihan has been active with the Illinois chapter of HDSA since 1992 as the editor of the award winning Hopes & Dreams chapter newsletter, and she also served on the Illinois board for a period of time. Her grandfather, uncle, and mother have all been lost to the disease, and she has a sibling who is gene positive.  She herself is at risk.  Maryann works in downtown Chicago as an executive assistant and lives in Calumet City, Illinois

Emily Zivin, MSW, MPA  HDSA Illinois Chapter Social Worker
Emily Zivin joined HDSA as the chapter social worker in August of 2015.  She earned her Masters in Social Work at Columbia University in New York and a Masters Degree in Public Administration from New York University Wagner School of Public Service.  She has worked in many different capacities within the health care field.  This includes past experience as a clinical social worker at Lenox Hill Hospital in New York City,  as a case manager for a managed medicaid company and as a clinical supervisor at the Cancer Center at Northwestern Memorial Hospital. She currently also works part-time for a virtual case management company.   Emily has also served on the board of The ARK in Chicago and volunteers in many capacities at her local elementary school. Although her own family is not at risk from HD, she is excited to join HDSA and become active in the HD community. She lives in Wilmette with her husband, two children and dog.

Deb Boyd
Deb Boyd is the HDSA Upper Great Lakes Region Director.  Most recently, Deb had a distinguished 15-year career with first candle/sids alliance, where she advanced through numerous managerial positions, including chapter representative for the state of Michigan, field service director for the midwest region, and vice president of field services, before being promoted to executive director, a title she held for seven years.  Among her key accomplishments at First Candle, Deb was instrumental in revitalizing the community level infrastructure of First Candle, and in bringing volunteer and staff development back as a priority for the organization.  Deb is a passionate advocate for families and is a true asset to the HD community of the Great Lakes.

For information or questions about the Illinois Chapter of the Huntington's Disease Society of America's web page, please contact Dave Hodgson  at