Connect with our local chapter:
We invite all those diagnosed with Huntington’s Disease, their families, caregivers and individuals who are at risk to attend our Support Group meetings. Meetings provide a supportive environment where participants can share concerns, challenges, and successes. In addition, participants can lend emotional support to one another and lessen feelings of isolation. Meetings are always free to attend and all locations are accessible. Your involvement is important for our support groups! At a meeting you might learn about a community resource, discover a new research study or hear from a guest speaker. Please consider joining us! For further information about any of the support groups, please contact Emily Zivin at 630.443.9876 or email at  Cancellations may occur in the case of inclement weather. We will attempt to notify everyone with advanced notice by email. If you are concerned that a meeting may be cancelled, please contact Emily Zivin at 630.443.9876 to confirm.

Due to Covid restrictions, all support groups will be virtual through Zoom. Please email the support group leaders directly to receive the zoom meeting invite.

The Geneva/Rockford/Bloomington groups will be held on the 4th Sunday of every month. 2pm - 3:30
For more information please reach out to one of the follow support group leaders;
Bloomington: Larry Haigh,
Geneva: Joe Wiedemann,
Rockford: Charlotte Rybarczyk,

Lake County
2nd Monday of every month
7 p.m. to 8:30 p.m.
contact: Barry or Marilyn kahn
p. 847-975-2403

Rush/Cellini Foundation
Will be on Saturdays. Fourth Saturday of the month, 10 AM to 12 PM
Please contact Key'Aira Glasper 

Northwestern Medicine/ Cellini Foundation HD Virtual Support Group 2021
We will be alternating between general support groups and topic driven discussions. Support groups are held the second Saturday of every month from 10:00 am - 11:30 am. 
For meeting invite, please email Emily Zivin, All meetings will be held via Zoom.
*Please note, for the Saturday education events, support groups will be held after.

     1. March 13th at 9:30 am
          Education event and support group
          -Topic: Genetics and HD
          -Speaker: Lisa Kinsley, Genetic Counselor
          General support gorup after presentation
     2. April 10th: Converation, Gene negative or non-HD in an HD family
     3. May 8th: General Support Group
     4. June 12th: Conversation, Gene positive
     5. July 10th at 1:00 pm
          Education event and support group
          -Topic: Managing Difficult Behaviors
          -Speaker: Dr. Eric Gausche
          General support group after presentation
     6. August 14th: Conversation, Planning for the future
     7. September 11th: General support group
     8. October 9th: Conversation, Caregiving
     9. November 13th at 9:30 am
Education event and support group
          -Topic: Clinical research updates
          - Speaker: Dr. Danny Bega and research participant panel
          Geneal support group after presentation
     10. December 11th: Conversation, Thinking about testing 

Munster, Indiana
2nd Tuesday of even months
7 p.m. to 8:30 p.m.
Southside Christian Church
1000 Broadmoor Ave.
Munster, Indiana
contact: CindyRogers
p. 219-836-2369

On-Line Support for those at-risk and asymptomatic
The Illinois HDSA chapter is now offering a closed, monitored (by the chapter social worker) google group for individuals who are at-risk/asymptomatic. This is a private online group that allows individuals to ask questions, share ideas and support one another. All members of the group must be 18 years and older. If you are interested in joining, please email and ask to join the at-risk/asymptomatic google group. Emily Zivin, LCSW Illinois Chapter Social Worker Huntington's Disease Society of America (630) 443-9876.

Caregiver Support Group
Caregiver support group: 2021 dates:  2/3, 4/7, 6/2, 8/4, 10/6 and 12/1. 7-8:30 PM Contact person: Emily Zivin, 630-443-9876 or

Meeting Guidelines We read the guidelines before each meeting to remind us that we are all responsible for following and committing to the group standards, which are in place to keep this group a safe place to share.
Share the air time Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
One person speaks at a time Each person should be allowed to speak free from interruptions and side conversations.
What is said here stays here This is the essential principle of confidentiality and MUST be respected by all participants.
Differences of opinion are OK We are ALL entitled to our own point of view.
We are all equal We accept cultural, linguistic, social and racial differences and promote their acceptance.
Use "I" language It’s important to use “I” language because you are talking about yourself and not a vague person or group of people.
The use of “I” helps avoid someone feeling like they are being attacked. Examples include: “I feel like you handled that difficult situation the best that you could have” “I had good experiences with antidepressant meds in my family”
Its OK not to share People do not have to share if they do not wish to.
Its everyone's responsibility to make the group a safe place to share We respect confidentiality, treat each other with respect and kindness, and show compassion.

Copyright © 2019, Huntington's Disease Society of America