We invite all those diagnosed with Huntington’s Disease, their families, caregivers and individuals who are at risk to attend our Support Group meetings. Meetings provide a supportive environment where participants can share concerns, challenges, and successes. In addition, participants can lend emotional support to one another and lessen feelings of isolation. Meetings are always free to attend and all locations are accessible. Your involvement is important for our support groups! At a meeting you might learn about a community resource, discover a new research study or hear from a guest speaker. Please consider joining us! For further information about any of the support groups, please contact Emily Zivin at 630.443.9876 or email at firstname.lastname@example.org
Cancellations may occur in the case of inclement weather. We will attempt to notify everyone with advanced notice by email. If you are concerned that a meeting may be cancelled, please contact Emily Zivin at 630.443.9876 to confirm.
2nd Sunday of even months (no meeting in December)
2:30 p.m. to 4:30 p.m.
OSF PromptCare Fort Jesse
2200 Fort Jesse Road,
Normal, IL 61761d
contact: Larry Haigh
3rd or 4th Sunday of odd months: 2020 Dates: 1/19, 3/29, 5/17 (At the Naperville Team Hope Walk
, 7/19, 20, 11/15
2 p.m. to 3:30 p.m.
300 Randall Road
entrance is now through hospital south entrance, go past cafeteria and proceed to Medical Office Building 351, conference room 4.
2nd Monday of every month
7 p.m. to 8:30 p.m.
Advocate Condell Medical Center
801 Milwaukee Ave.
contact: Barry or Marilyn kahn
2nd Sunday of every month
2 p.m. to 4 p.m.
OSF St. Anthony Hospital
5666 E. State St.
contact: Charlotte Rybarczyk
2nd Tuesday of odd months
7 p.m. to 8:30 p.m.
Thomas Cellini Huntington's Foundation
3019 East End Ave.
South Chicago Heights,Illinois
contact: Maryann Moynihan
Rush Medical Center
**Note NEW LOCATION**
Rush Oak Park Hospital
520 S. Maple,
Oak Park, IL 60304,
Conference Room 1B Every Third Saturday from 10am – 12pm
Parking is free Refreshments will be provided
2020 Dates: January 18, February 15, March 21, April 18, May 16, June 20, July 18, August 15, September 19, October 17, November 21, December 19
Northwestern Memorial Hospital
Northwestern Support Group for those affected by HD and their families.
Make sure you are on our monthly HD email list by contacting Emily Zivin, MSW, MPA at email@example.com
Location: Conference Room at Logan Square Library, 3030 W Fullerton Ave, Chicago, IL 60647
The building is one level and handicap-accessible. Free ground-level parking available.
Time: Saturdays 10:00 AM-11:30 AM
January 18, 2020, March 7, 2020, May 16, 2020, July 18, 2020, September 26, 2020, November 14, 2020 (after the NWMC Symposium)
2nd Tuesday of even months
7 p.m. to 8:30 p.m.
Southside Christian Church
1000 Broadmoor Ave.
On-Line Support for those at-risk and asymptomatic
The Illinois HDSA chapter is now offering a closed, monitored (by the chapter social worker) google group for individuals who are at-risk/asymptomatic. This is a private online group that allows individuals to ask questions, share ideas and support one another. All members of the group must be 18 years and older. If you are interested in joining, please email firstname.lastname@example.org
and ask to join the at-risk/asymptomatic google group. Emily Zivin, LCSW Illinois Chapter Social Worker Huntington's Disease Society of America (630) 443-9876.
Caregiver Support Group (Note New Location)
Location: Northfield Branch Library
Address: 1785 Orchard Lane
Northfield, Illinois 60093
Location: community room
Meeting dates: 2/19, 4/15, June, August, October, December TBD
Time: 7-8:30 P.M.
Contact person: Emily Zivin, 630-443-9876 or email@example.com
We read the guidelines before each meeting to remind us that we are all responsible for following and committing to the group standards, which are in place to keep this group a safe place to share.
Share the air time
Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
One person speaks at a time
Each person should be allowed to speak free from interruptions and side conversations.
What is said here stays here
This is the essential principle of confidentiality and MUST be respected by all participants.
Differences of opinion are OK
We are ALL entitled to our own point of view.
We are all equal
We accept cultural, linguistic, social and racial differences and promote their acceptance.
Use "I" language
It’s important to use “I” language because you are talking about yourself and not a vague person or group of people.
The use of “I” helps avoid someone feeling like they are being attacked.
Examples include: “I feel like you handled that difficult situation the best that you could have” “I had good experiences with antidepressant meds in my family”
Its OK not to share
People do not have to share if they do not wish to.
Its everyone's responsibility to make the group a safe place to share
We respect confidentiality, treat each other with respect and kindness, and show compassion.
Copyright © 2019, Huntington's Disease Society of America