We invite all those diagnosed with Huntington’s Disease, their families, caregivers and individuals who are at risk to attend our Support Group meetings. Meetings provide a supportive environment where participants can share concerns, challenges, and successes. In addition, participants can lend emotional support to one another and lessen feelings of isolation. Meetings are always free to attend and all locations are accessible. Your involvement is important for our support groups! At a meeting you might learn about a community resource, discover a new research study or hear from a guest speaker. Please consider joining us! For further information about any of the support groups, please contact Emily Zivin at 630.443.9876 or email at firstname.lastname@example.org
Cancellations may occur in the case of inclement weather. We will attempt to notify everyone with advanced notice by email. If you are concerned that a meeting may be cancelled, please contact Emily Zivin at 630.443.9876 to confirm.
Lake County Support Group - Virtual
Second Monday of every month at 7:00 pm
For login contact Barry or Marilyn Kahn
Phone: 847-975-2403 or email@example.com
Rush University Medical Center HD Support Group - Virtual (Zoom)
Fourth Saturday of the month from 10:30 am - 12:00 pm
Lead by: Luci Blasucci RN and Key'Aira Glasper, LSW (Social Worker)
For information regarding the next support group meeting please email firstname.lastname@example.org
or contact us at 312-563-2900
Northwestern Medicine Huntington's Disease Support Group - Virtual
Second Saturday of every month at 10:00 am
Even number months: General HD Support Group
Odd number months: Caregiver Support Group
Contact: Emily Zivin, email@example.com
Register in advance for this meeting: https://northwestern.zoom.us/meeting/register/tJIqf-2vqT8qE9KddIKdiOkVyTijeHFvyhYL
Illinois HDSA Chapter Online Support Group
Third Tuesday of every month, October 19th at 7:00 pm
Contact: Charlotte Rybarczyk, firstname.lastname@example.org
Register in advance for this meeting: https://hdsa-org.zoom.us/meeting/register/tJEufumvpjosHtGoWGckkn3GCqwnTf8Fttn6
Illinois HDSA Chapter Caregiver Support Group - In Person
New Date: Tuesday, October 12th at 7:00 pm
December date: TBD
768 Oak Street, Winnetka
Community room, lower level
Contact: Emily Zivin at 630-443-9876 or email@example.com
Munster, IN Support Group
Second Tuesday of even months
Southside Christian Church
1000 Broadmoor Ave
Date and Time: Subject to change
Contact: Cindy Rogers at 219-836-2369 (home phone) or firstname.lastname@example.org
or Monica at 219-616-1393 (cell phone)
We read the guidelines before each meeting to remind us that we are all responsible for following and committing to the group standards, which are in place to keep this group a safe place to share.
Share the air time
Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
One person speaks at a time
Each person should be allowed to speak free from interruptions and side conversations.
What is said here stays here
This is the essential principle of confidentiality and MUST be respected by all participants.
Differences of opinion are OK
We are ALL entitled to our own point of view.
We are all equal
We accept cultural, linguistic, social and racial differences and promote their acceptance.
Use "I" language
It’s important to use “I” language because you are talking about yourself and not a vague person or group of people.
The use of “I” helps avoid someone feeling like they are being attacked.
Examples include: “I feel like you handled that difficult situation the best that you could have” “I had good experiences with antidepressant meds in my family”
Its OK not to share
People do not have to share if they do not wish to.
Its everyone's responsibility to make the group a safe place to share
We respect confidentiality, treat each other with respect and kindness, and show compassion.
Copyright © 2021, Huntington's Disease Society of America