MAY IS HD AWARENESS MONTH | #LETSTALKABOUTHD

Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using #LetsTalkAboutHD to educate the world about the devastating impact that HD has on families.

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NOMINATIONS ARE NOW OPEN!

Nominate the extraordinary individuals, families and organizations in your community and the HDSA Chapter or Affiliate that has accomplished great things during 2024.

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MEET OUR NEW PRESIDENT AND CEO AMY GRAY

We are excited to announce that Amy Gray has joined our organization as the new President and Chief Executive Officer.

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2025 TEAM HOPE WALK - NAPERVILLE

Registration is now open for the Naperville Team Hope Walk. Sign up today and join us on May 18th!

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JOIN POWER HD

By generating the most comprehensive patient-driven Huntington’s disease data we can accelerate research and the development of new drugs, devices, or other therapies. YOU HAVE THE POWER.

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Registration is Now Open!

Join us for the 40th Annual HDSA Convention in Indianapolis, Indiana on June 26-28, 2025 This is your unique chance to connect, learn, inspire and get inspired. Our convention is not just an event – it’s a celebration, it’s magic!

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HDSA Publishes 2023 Year In Review Magazine

Take a look back on HDSA's achievements and top stories from 2023 in the latest Year In Review Magazine.

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FIND HDSA RESOURCES NEAR YOU

HDSA provides world-class support programs and resources across the country for everyone impacted by Huntington’s disease. Visit our interactive map to get started today!

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HDSA SOCIAL WORKERS

HDSA Social Workers are often the first voice that someone new to HD may hear. Social workers offer information, education and access to community based services within a specific region.

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HDSA SUPPORT GROUPS

HDSA support groups are free for individuals, their loved ones, and families impacted by Huntington’s disease.

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Family Members Take Action!

Tell Congress No Cuts to Medicaid!

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Good Day Chicago

Did you catch Lillie Paxson, Wayne Galasek, and Tom Barr on Good Day Chicago? If you missed it, catch Lillie, Wayne, and Tom spread awareness of HD and the upcoming 2025 Team Hope Walk here!

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